Showing posts with label compassion. Show all posts
Showing posts with label compassion. Show all posts

Monday, April 16, 2012

Lessons Learned?

Don't fall asleep with gum in your mouth. 

Listen to your gut. 

Don't marry someone because everyone else thinks you should.

Do your best in school.


Is there a list somewhere that I can check off as I learn life's lessons? Is there a master sheet of lessons that lets me know when I am finished, or what I have yet to learn? Oh, I know there isn't; that would be too easy. It would take some of the misery (yes, I meant to type misery, not mystery) out of life, and life is meant to be chock-full of misery, so that we can recognize the joy...right?

I'm veering slightly off topic. Let me veer back. 

I'm hoping that learning a few things along my rarely-merry way will get me to the finish line all that much faster. Or something like that. 

I learned long ago to accept help. That one is still hard. Especially when the help is with something that embarrasses you that you haven't done on your own, or at which you are not a consummate pro. So I grit my teeth that are embarrassed and shine the ones that are so, SO thankful for the help, and hope that indeed, those rendering the service are blessed in return far beyond that which they rendered. This happened today, and last week, and I'm afraid will need to continue to happen from time to time. It's so hard to accept help and not feel like a loser. It's easier when I think of how blessed those who help will be for their selfless acts.

When I see old people out and about, I mean really OLD people, who have to be dragged and toted about by their already aging children, I have always thought, "Why not just leave them home???"

It hit me this week how awful it is to be in the same rooms all the time and never go anywhere. It's taken nearly three years, but I'm finally stir crazy. These past few weeks of being sick, the past month or so of not being able to drive myself anywhere have finally made me feel trapped. I get around inside the house okay, but no where to sit is comfortable. Nothing is interesting, or important or interesting. I have no sense of purpose or potential accomplishment. 

I understand stir crazy. I  understand puttering. I understand why old people need to be taken out and about. This is, of course, part of a bigger lesson; tolerance for the elderly, compassion even. I'm getting there. I'm getting better. I worry that it involves when they are behind the wheel of a car as well, but I also hope that is one of my "closer to the Pearly Gates" lessons.

Which leads me to one of the bigger things I think I stared down this week, but in no way wish to imply to the universe that I now think I can handle it, because I can't. 

Depression. I've struggled with depression and anxiety most of my my life, I would say, but this past week, being trapped alone at home, being sick and unable to eat, I found myself staring down the abyss. I truly felt like I was at that place where there was no where else to go. I've always denied that I had a choice in the matter, but this week, with the silently-typed words of encouragement of a wise friend, I was able to make a choice. I put it in the Lord's hands, admitted that I cannot do this, and read my scriptures for quite a while. Am I still depressed? Yes, of course I am. But I know there is a very real precipice, and for my little part, I was able to turn and face away from it for just a bit. Can I stay facing away from it?

One day at a time.

Wednesday, May 12, 2010

Needle Trauma and Mini-Melt-Down

Yesterday was my 2nd scheduled Zometa infusion and blood draw at the Onc office. I was really fine heading in. A nurse came out and talked to me in the waiting room about if and how much saline I wanted to do this time. When I was called back, I was in fine spirits and a talkative gentleman in the chair next to mine struck up an instant conversation. He has stage IV colon cancer, and is responding well to chemo.

A medical assistant came to take my vitals. I was talking to my chair neighbor, and didn't notice until the stupid auto blood pressure machine squeezed my forearm twice, unsuccessfully, that I had let her put it on my left arm, and hadn't noticed because I was talking. Then I got irritated and told her WRONG ARM and get a bigger cuff or forget it. What good is a medical assistant certificate if you can't take blood pressure the real way?  She said, oh yes, I have a bigger cuff...and successfully got a reading on my upper right arm. Luckily I don't have lymphedema problems.

I was still OK, and chatting with my neighbor, when the REAL nurse came to do the needles. I showed her where my good/preferred vein was and looked away, as I can't watch needle stuff.

I don't know what she hit or missed, but her first stab HURT! And not just the initial jab, but kept on hurting! This is the instant button for me to cry. I asked, through my tears, if this was for the IV, just to make sure we were on the same page, and because I thought surely the pain would stop soon. She said, no, she was taking the blood first. I thought she meant she was drawing the blood with a needle, and would then poke me again for the Zometa IV.

Insert mini-melt-down here. I was crying quite pathetically. She kept telling me to calm down, that I was clamping down and she couldn't get the vein to work while I was clamping down. The pain continued, while I still looked away, and I assumed that all the fiddling she was doing was drawing the blood. I was sobbing. That's how I am with needles. I went on a tirade about the reason I was having my blood drawn here was to be poked only once, that I had only two veins to last the span of whatever life I have left. She tiraded back that no one can guarantee that I will only have to be poked once, which really confused me, and made me more angry. I tiraded that if I couldn't have the blood draw and Zometa infusion in the same needle, that I wasn't going to do either! I was sobbing and kind of yelling.

When she withdrew that needle, I looked/asked/realized that all the fiddling had been fishing and she hadn't gotten the needle in the vein or gotten any blood at all! She got a heating pad and wrapped my arm, and I cried and complained some more about getting the blood from the same IV as the Zometa. She said that's what she was doing, but couldn't get the vein. Well, that's not what I was led to believe, or what I understood. She was NOT patient, or compassionate, and did not explain it well enough.

While I sat there with my arm wrapped in the heating pad, my neighbor asked if I needed anything. (still dabbing my eyes with tissue) I said, "no, unless you have some Valium on you", and then remembered that I DID have Valium on me! I popped a Valium and calmed down quickly, then moved to closed off/vegetative state. The nurse came back and got the needle in, drew the blood and started the saline. The rest of the infusion went off without incident, though I did not go back to chatting, and kept my head down over a crossword puzzle, cuddling the heating pad.

After I checked out, I went back into the chemo room and apologized to that nurse for over-reacting. She said it was OK, that we'd get through this together.

Well, maybe so, but I wont be getting through it together with HER anymore. I have no qualms with her skill (though now I know to specify that if the needle person doesn't get the vein at first, NO FISHING! Pull it out and try again), I did not appreciate at ALL her attitude. I don't know the name of the nurse who did my infusion last month, but I want her again, or the blond one who is nice. If you work in a chemo room, then you need to be able to handle crying tirades with the patience of a pediatrics specialist; I have Stage IV cancer and I'm not happy about it, and I hate needles. HATE! Traumatic! Stemming back to being six years old in the hospital. Lifetime traumatic relationship with hypodermics. I don't need to be berated for tensing up or clamping down, or TOLD that I need to calm down. I know the nurses rotate within the office, and the same people are not always in the chemo room, but I intend to ask that I NOT have this particular person again.

I'm a big baby with needles, and if you're not good at it, or can't treat me like the baby that I am, then I don't have time for you. She asked me if I'd considered a port. I looked at her incredulously and said, "A port for Zometa??"  A port is still a poke, though there's no hit or miss with it. And I don't want a port unless/until I have to do chemo. I'm not THAT wimpy.

Agreeing to do Zometa was a BIG DEAL for me, and I worry about the side effects and possible side effects, and I worry that it's administered by IV.

I want a nicer nurse next time. One who can still explain things to me if I panic or cry. I don't think that's too much to ask. I have a list of names at the local lab of phlebotomists who can find my veins without fishing or trying twice. I don't doubt the skills of the chemo nurses; they are the most skilled in the biz, but I expect nicer treatment and a little compassion.

I iced my arm when I got home. There was a weird bubbled up place in between the two needle holes. I iced it off and on all evening, and it's not swollen this morning, just bruised and a bit sore.

On a better note, no fever and chills last night. I am achy today, joint pain, but I was happy to wake up and not have had any fever and chills.